Sharing her Sister's Story

  Last August a lady named Jenifer from Orange County, California, whom I never met emailed me. She asked me to share the story of her sister, Alison, who succumbed to malignant melanoma - deadliest form of skin cancer. Knowing that completing another edition of my book has been postponed to a TBD date, I decided to archive her email for the future edition.

 Yet, today, after a girl at work asked me to take a look at a mole and determine if she needed to see a dermatologist, I suddenly remembered this email about Alison. Then, I remembered how my friend, Tiffany's husband, who is featured in my book as a two-time skin cancer survivor lost his third and final battle with the disease one year ago.

 It is important to remember that while skin cancer is highly preventable, it does claim lives. Therefore, it is vitally important that we take the proper precautions - and not take for granted the fact that is largely preventable; rather, remember that it's only "preventable" if we protect ourselves. Do not take for granted the importance of proper, year-round sunscreen use, performing self skin exams every month and visiting your dermatologist every year - and especially avoiding tanning beds. There is absolutely no such thing as a safe tan from a tanning bed. Period. Claims that tanning beds are good sources of Vitamin D or catalysts for combating depression are categorically untrue. Feel free to read previous blog posts about all the aforementioned topics, and definitely search the American Academy of Dermatology for official medical information about skin cancer prevention.

 Again, the only way we can stem the tide of this growing epidemic is both through proactive prevention and educating others - especially youth. There is really no reason that someone in the United States should die from melanoma - the deadliest form of skin cancer - every hour, if we are wiser about UV safe/skin health behaviors.

 Perhaps, sharing Jenifer's sister's story will inspire you to be a personal "skin cancer crusader" both in your life and in the lives of those you know and love:

[Note: The following is quoted verbatim as shared in a direct personal email dated 8/4/09, and is printed with permission from the sender.]

"Danielle, 

This is a story about my sister in her own words. Her life was filled with lots of humor and tons of love to give. We will always remember her needs for candy…and lot of it, her love for all things Vanilla and White…..but most of all we will love celebrating HER! She has so much fight and so much ability and so much to share. Alison has fought her fight and is about to go peacefully! Please read and enjoy her story and pass long the news. Thank you! Jenifer.

 I grew up in Orange County. A southern Californian fair- skinned blue eyed blonde, who spent countless hours and days bathing in the warm sun, desiring for that golden tan skin. I spent many summer afternoons lounging at the beach or the pool with my girlfriends, when I wasn't coaching swimming lessons or lifeguarding at the local college pool. I was the head coach for an Irvine swim league and took them from 20th place to 10th. I was living the life as a young adult. I had no worries. I had no fears. I just wanted to be pretty, and of course, tan.

I still remember my father scorning "You'd better put on sun screen", before I would leave the house every morning. I always looked at him as if he was crazy. I swore he was a complete dork! Didn't he understand? I needed to be tan. I wasn't going to be tan with sunscreen.

Years would pass. I graduated from high school at Capo Valley. I kept sun bathing. I continued teaching private swim lessons-1 never wore a hat. I never wore sunscreen like my dad had warned so many times. I always would burn, then burn again, eventually building up a base tan. After the first month I would be able to tan my skin. This process took place every Summer.

I was accepted to Otis Design School in Los Angeles. I wanted to be a fashion designer. I wanted my own clothing line. I received my AA degree from a local community college, Orange Coast and then enrolled at Otis. On summer days, I tanned in my backyard or at the pool.

In 1996,1 had a beautiful baby girl and named her Madison Alexis. She became my everything. I was a single mom and it was just the two of us. I taught her how to swim and we spent many Summer days lounging around the pool or at the beach. Of course I was still sun bathing-1 loved the sun. Madison just loved being outdoors and loved swimming.

One Autumn day, I woke up and suddenly realized I had a mole on the inside of my left calf. Odd, I thought. I have a lot of moles on my body, so I didn't think anything of it. I made an appointment with my family physician to have him look at the mole. I trusted him. He knew me well- he had known my history and could give me advice on what to do. An hour later, the appointment ended. He told me it was just a mole and wasn't anything I needed to worry about. He suggested I have it burnt off, if it was really bothering me. He definitely did not seem concerned. He was in a hurry and left the room. I left the room with a sigh of relief- it was nothing!

Months would pass, which somehow turned into a year. The mole was still there, but this time, it had changed color and size and shape. I swore I thought I just kept cutting it while I was shaving. I thought it had just formed a scab. I would remind myself it was nothing. The doctor even said so. I kept covering it with band-aids.....until one day is started bleeding.

I dropped off my little one at preschool early one day, kissed her goodbye, and drove to the emergency room at Hoag Hospital. I didn't want to take Madison with me, I knew she would be scared. It was 6 am. Now I was scared. I checked myself in and was seen right away by a doctor. He observed the mole and had a puzzled look on his face. The look remained on his face for about 10-15 minutes, until he excused himself from the room. As he returned, with 10 medical books in hand, the doctor and 4 of his fellow doctors, were quickly thumbing through the books anxiously hoping to give me some answers. I heard them say over and over, "No, it sure doesn't look like cancer."

I was feeling relieved. They told me they didn't know for sure, but that they recommend I see a dermatologist. It definitely didn't look cancerous. I was confused. I had never seen a dermatologist before. I always had good skin.

They handed me a piece of paper with the number of a dermatologist near my house, and told me to make an appointment as soon as possible. I left immediately. I swore I was fine.

As soon as the dermatologist's office opened, I called to make an appointment. Luckily, they had an opening the very next Monday. I was in. I was positive everything was going to be fine. It wasn't cancer. It didn't look like cancer. I trusted those doctors, especially my family doctor who I have known since the age of 5.  I was going to be fine.

Madison and I drove to my appointment. We checked in. I was called in immediately. Madison sat behind me and I plopped down on the doctor's chair. The doctor entered the room and within 30 seconds of viewing the mole, he urgently asked me how long I had had it for. I explained to him that I was a super busy, single mom, was going to school, working full time and raising a daughter, etc....."I don't know", I said. "A month. A few months. A year." I had lost track of time. He was not happy. He looked as if he was going to jump out of his skin and strangle me. He said nothing. He quickly disappeared. Fifteen minutes later he returns with 2 nurses, 2 trays covered with doctor tools and supplies, and some kind of machine. I was confused. I was scared. Madison began to cry. The doctor told me to lay back. He warned me not to look up. It all happened so fast. My body became numb.

Madison's cries turned into screams and she began to yell out, "Why is there so much blood everywhere?" and "What are you doing to my mommy?". When the procedure was over and after I calmed my little one down, the doctor again warned me to not look up. I did. In front of me, floating in a little clear tube, was a 3" substance which looked like a leech. I asked the doctor where he found that leech, and he told me, "It's not a leech. We got that from you leg." I wanted to vomit. My daughter looked into my eyes and continued to cry. I was still numb. I was so confused.

The doctor said he would call with lab results within the next three to five days. He was sending the leech out for testing. I wanted to cry. A million things rushed through my head. Was it cancer? Was I going to die? Will I be here for Madison? Will I ever be able to have my own clothing line?

4 days later the phone rang. I still remember how eerie the phone sounded when it rang. It was the doctor's office. They left a message. I needed to return for the results from the biopsy. I couldn't breathe. It was going to be bad news. I just knew it. They would have said something if it was good news.

I returned to the dermatologist's office to discover that I had stage III melanoma. The doctor was afraid it had spread to my lymph nodes since the mole was so big and had grown so deep into my skin tissue. He couldn't believe what I had gone through. They wanted to rush me immediately to John Wayne Cancer Institute to perform a wide excision biopsy, including the blue node biopsy- to see if the tumor had spread. I would probably need a skin graph to cover the enormous wound, which would include the aid of a plastic surgeon. They also discussed chemotherapy, radiation and a multiple of treatments. At that moment, I stopped hearing any words. I wanted to just hold Madison.

I followed the advice of the dermatologist, and after my urgent meetings with the team at John Wayne Cancer Institute, I agreed to have the surgeries performed.

On April 10, 2001, at the age of 27, I was diagnosed with Stage III melanoma. The disease had traveled to my lymph nodes and I had to have seven removed. I had a wide excision biopsy, which meant that they had to remove an inch and a half clearance all around the original 3mm site. I also needed a skin graph- the site was just too big and way too deep to heal by itself. They were afraid the tumor had traveled to my brain or lungs. Numerous tests would reveal- the tumor did not travel outside the lymph nodes. They also told me my survival rate was three to five years.

The wound on my leg was so deep and so big, that a nurse had to come to my house two times a day to bandage and re bandage the wound. I was unable to walk for 30 days. It was hard to take care of my daughter. I was hurting constantly and was struck with fatigue on a daily basis.

After the wound healed, I was referred to an oncologist, near my house, and underwent 30 days of interferon treatment. It was brutal. I had extreme flu symptoms on a daily basis, and couldn't get out of bed for a month. My family came in to help me with Madison. I wouldn't leave the house. My hair fell out. It was a horrible time. They had to take me off interferon after 30 days, because my body could not longer handle it and my white blood cell count kept drastically dropping. My doctor explained that I had received 80% of the treatment and it wasn't necessary to continue. It took four months to recover.

Months went by, and I started getting medical bills bounced back to me. My Health Net Insurance had denied my surgeries, my treatments, my hospital stays, my scans and even the hospice nurses. They had denied almost $200,000.00 in medical bills. I was in a state of panic and confusion. I was a single mom, unable to work. How was I going to pay for all of these bills?

Health Net claimed I had a pre-existing condition. When I filled out my paperwork at registration, they said I didn't check off the box that read: mole.

I was no longer allowed to get Pet Scans, MRI's, X-rays, etc., without having to pay cash. I needed to be scanned every 3 months. I couldn't afford that. My oncologist agreed to see me for regular check ups with no charge. I had to pay for everything else. That was impossible. I still owed $200,000.00 in medical bills.

I tried to get insurance from 9 different health insurance companies, only to receive letters in the mail stating that I was denied. I had no health insurance and lived every single day in fear that my melanoma would re-appear. I became obsessed with Madison being exposed to the sun. I stayed out completely. We put on sun screen every moment we walked outside the door. I wanted her safe. I just wanted to live.

After 4 years, I stopped getting regular check ups and started living my life as a cancer survivor. Again, I had no health insurance, could not afford to get scanned and my oncologist would no longer see me. I owed him close to $50,000.00 in past due invoices. I owed the Imaging Center close to $17,000.00. They would only take me in as a cash patient.

My hair slowly grew back. The symptoms from the interferon finally subsided. My wound healed (there is still a gigantic hole there). My daughter was growing bigger. Hooray-I was still a mommy. I started my own clothing line and lived each day as if I was normal. Of course I was tired, but I kept on going. Of course there were days when I wanted to lay in bed each day, but I was determined to fight this and to fulfill my dreams.

Everything was fine until March, 2008.1 was at my local gym working out, when I suddenly felt dizzy and started seeing little white lights spark in front of me. I thought that I was just exhausted from pushing so hard and because I hadn't eaten anything all morning. Besides I hadn't been inside a gym in over a year. I got down from the Stairmaster and walked into the bathroom to wash my hands. I was looking into the mirror, when I noticed the little white lights again. I felt sleepy, so I walked into the locker room and laid down on the bench. 

I closed my eyes....

I awoke in the emergency room at Harbor UCLA hospital, strapped down on a gurney. I was screaming in a state of panic. I had no idea where I was. I didn't know what year I was in. I didn't remember where I lived, or what my name was. I was confused. After a series of tests, and six hours later, they released me from the hospital and told me to make an appointment with a PCP. They told me they couldn't find anything in my test results. They failed to let me know they were preliminary.

Two days passed, and I was on my way to work. I pulled out of my driveway and onto the freeway, when I suddenly felt funny. I couldn't explain the feeling. I just knew something wasn't right. I turned my car around and checked myself back into the emergency room. Later that afternoon, while I was waiting in the hospital, my boyfriend handed me a piece of paper from the hospital, letting me know that I should come back to the hospital. They had found some suspicious information from the MRI and Pet Scan. I was already there, waiting to be admitted. Nine hours went by. I was still waiting.

I was admitted to the hospital and results would show that I had two tumors in my brain and a clump of tumors in my lungs. My melanoma had returned! They also discovered I had a fungal infection that I needed to fight off first. I stayed in the hospital for nine days. They diagnosed me with Stage IV melanoma and told me the prognosis was not good.

Not good at all.

I underwent four weeks of radiation, followed by the first treatment of chemotherapy, on the advice of my oncologist at Harbor UCLA. The infectious disease specialists prescribed me an oral medication (Noxafil) for my fungal infection. I was also prescribed many medications, followed by medications for my side effects from the primary medications. I was in pain. My hair fell out completely. I was always tired. I could not stop coughing and spitting up. I had an upset stomach every morning. But I kept working. I wasn't about to let this disease eat me. I was determined to fight.

My daughter decided to move in with her father, just recently. She said it was too painful to see me and she didn't feel comfortable sleeping next to me. She was afraid she would catch my melanoma. Hearing this was more painful than any tumor or any treatment. I was also losing my little baby to this terrible disease.

With all of these unanswered questions, and several doctors prescribing many medications in a sea of uncertainty, I decided to get a second opinion. I made the decision to call my surgeon and oncologist who saw me in 2001, hoping they would be able to give me a more definitive short term plan, a long term plan, and guide me more effectively since they were melanoma specialists. I knew I didn't have insurance but was hoping they would see me and help me. I was feeling like a number at Harbor UCLA and was traveling along a road of trial and error. I had had enough. This was my life we were talking about. I wanted my daughter back. I wanted to keep my company.

It's May 2008. I have been seeing my two melanoma doctors, Dr. Leland Foshag (surgeon) and Dr. Stephen O'Day (Chief of Research and Director of Melanoma programs) for 1 month now. I had all of my medical records, charts and scans transferred into their care. I qualified for a clinical trial and am currently into my 12 week program. They call the trial 006. Bristol- Myers, the company who sponsors the trial, has agreed to pay for most of the costs. I will still have to pay for doctor visits (which are $440 each), blood tests ($400-600 each), and trial nurse check ups ($250 each). It is a lot of money. But this is my life we are talking about and somehow the financial thing will have to work itself out.

I am still on seizure medication and am not able to drive for six more months. The DMV was kind enough to send me a letter which stated my driving privileges have been suspended until further notice. I go in for checkups with my clinical trial nurse weekly and my infusions continue every three months. I still work every single day. I strongly believe it is all in your mind. I can lie in bed and let this disease eat me or I can get up, get dressed, look in the mirror and thank God for the two things that drive me."

Thank you, Jenifer, for sharing your sister's story - and for allowing me to share it via this Blog. 

 Alison Bane, the founder of the Olive Jane Company, was like many other young women. She loved life, her daughter, and the outdoors. She had so much going for her; so much to live for, and malignant melanoma cut her life short thus orphaning a little girl. Speaking from experience, losing a mother to cancer forever "scars" a child. Melanoma is the number one killer of women in their 20s and 30s. Please do all you can to protect yourself, and spread the word about proper prevention to others. I have shared other, similar stories about young women who've battled melanoma. Just as breast cancer merits our immediate attention, so does melanoma skin cancer.

 To close this entry, here is a poem Alison wrote about her battle with melanoma.

Fight

I will continue to fight so my daughter will come home.
I will continue to fight so my company will grow.
I will continue to fight so my hair will grow back.
I will continue to fight so I can drive again.
I will continue to fight so I can stop coughing for one day.
I will continue to fight until I beat this disease.

- Alison Bane. 

Worthy of Remention

   Because July is national Ultraviolet Radiation Awareness month, it seems appropriate to mention - again - a wonderful educational resource that teaches young children about sun safety. (Especially since the sun is our main source of UV exposure.)

  As a preschool teacher and cancer educator, I am constantly instilling unique, creative and fun ways to help youth protect themselves from skin cancer. Did you know that 80% of one's lifetime sun damage occurs before age 18? Yet, if we foster a habit of daily [year-round] sunscreen use, and are smart about protecting our skin during the peak hours of 10:00 a.m. - 2:00 p.m. when the sun's rays are most intense (even on cloudy, cold days), we can significantly reduce both our and our child's risk of skin cancer.

 This issue has, yet again, hit especially close to home for me as one of my very favorite people recently underwent skin cancer surgery. I told my preschoolers about it, in a way they can understand, through use of this delightful book entitled SkinSense. It's a book I had the lovely pleasure of reviewing prior to its publication.

 SkinSense, written by licensed clinical social worker, Lori Glickman, features colorful illustrations by her [then] 10-year-old daughter and explains the importance of sun safety in a fun, engaging way that young children can grasp and understand. I highly recommend every parent, early childhood/elementary teacher, health professional and anyone who cares about the safety of our children to get - and give - a copy of SkinSense.

 It is important for our children to experience the outdoors, as it provides vast opportunities to engage their motor skills and learn about their environment. Similarly, it's important for them to experience this as safely as possible - this means proper, daily protection against over-exposure to UV rays from the sun.

 For more information about ultraviolet radiation, proper sunscreen use, even sun protective clothing, etc., please review the many informative articles on the subject[s] here on this Blog. You can also check out the American Academy of Dermatology.

 Here's to being safe in the sun this summer - and all year round. And don't forget to get a copy of SkinSense! My preschoolers love it - and so will you! And while you're at it, visit the official Skin Cancer Awareness store and show your support!

Hello, Again, Cancer Crusaders

For starters, my apologies for neglecting this blog for so long. In short, circumstances were as such that demanded my personal attention. And, as we all know, we cannot effectively serve the community (much less fight skin cancer) if we don't first take good care of ourselves and the people in our lives. Since my last entry, I changed careers; leaving the professional marketing/public relations world to return to college and pursue a second degree in psychology/dance therapy. Additionally, while in school and changing [some of] my personal goals, routines, etc., I felt it absolutely imperative to invest considerable time doing some real soul searching; because my work with the skin cancer community involved promoting the official National Skin Cancer Awareness [ribbon] Symbol, which was designed by someone else - and not me; the fact that it represents not only a universal symbol for a world-wide [yet highly preventable] epidemic, but something deeply personal to its creator, I felt, in a word, torn. I was torn between the commitments I had made to the skin cancer community, as well as to my former associate and dear friend, and tenaciously trying to find out what course of action would be best for all involved - including myself. For many years, I was operating at lightning speed. Fighting skin cancer was not only something I devoted many volunteer hours in my spare time outside of my "real job"; rather, it had become almost an all-consuming "thing". The line between Danielle, the award-winning cancer crusader and Danielle, the person was disappearing, thus a healthy sense of balance had been lost. At any rate, I desperately needed time to think; to think about how/where I was going, and how the ribbon's creator and family might be feel about pushing it non-stop across the globe (though, they gave me permission to do). Needless to say, I was riddled with tremendous guilt. Establishing The Cancer Crusaders Organization was my dream. It was not only a way for me to honor my mother, whom I lost to cancer, but also a way for me to serve so many individuals in a uniquely widespread, impactful manner. So, how could I need a hiatus?

Summarily, recent news about someone dear to me possibly having to face skin cancer suddenly awakened me to a solution on how to contribute to the cause, pursue my new [additional] dream of promoting dance therapy/psychology, and still having a fulfilled personal life. I'll begin by taking simple, small baby steps. Perhaps, starting with an occasional blog entry/article on skin cancer. Then, inching toward [maybe] finally revising and updating both my three-year-old ONLY SKIN DEEP? Book and my skin cancer curriculum. And, hopefully, eventually doing an original sun safety children's book with one of my best friends. (I collaborated on and edited a sun safety children's book entitled SkinSense by author Lori Glickman, in 2007. Yet, I have long had an idea for another one), and possibly traveling the country speaking again. The key is: I must first maintain balance: Friends/loved ones and spirituality first. Then, school and my new [eventual] career in child psychology/dance therapy. Followed by personal activities, which include cancer crusading on a small scale (at least significantly smaller than years past).

 While this may not be ideal to/for the many wonderful colleagues with whom I've worked over the past seven years. It may not make much sense, especially when I had once been doing this 30+ hours a week [voluntarily] writing, speaking, creating curriculum, launching/hosting radio talk shows, promoting global campaigns, etc., thus garnering three Gold Triangle Awards from the American Academy of Dermatology. Yet, I feel really good about this decision. It has taken me a long time to arrive at this conclusion, but I am making it without any guilt nor regret. I can still contribute to a cause that's so very dear-and-dear to my heart; to help raise awareness about the world's most common - yet PREVENTABLE - cancer. I'll just do it on a very small, small scale when it's appropriate. Individuals will still be able to order an official National Skin Cancer Awareness pin, thus both promote and support the cause. (I am working getting that online in an inexpensive - if not "free" - manner that's simple, effective and streamlined.) As for any other projects, we'll see how things play out going forward. The point is: I hope people will understand my to maintain a healthy balance in my life, and keep my priorities straight. Contributing to the cause is important to me, it just isn't my "entire life" anymore. God didn't create me solely for the purpose of cancer crusading. I am, first and foremost, an individual and I must live life honestly and wholly - which includes cultivating and maintaining healthy, meaningful and lasting interpersonal relationships, pursuing my educational/career goals, having time to laugh and savor, and taking care of myself. If I fail to do this, I fail everyone -- including the cause. Fighting cancer is not my life; rather, it's something in my life that I care deeply about - in addition to many other things. 

Thus, that's my long overdue update. Again, I feel good about this... I'm going to "go with the flow", so to speak, and see when/where I can fit in some cancer work in a healthy [balanced] way. Until then, I'm taking it day-by-day, trusting that those who know me well with both understand and respect my decision. I must be true to myself, without forgetting to LIVE my life. Over the past year, I believe that I've finally started doing that... 

In closing, as we strive to save other's lives, remember to actively LIVE and savor every moment of our life. As we strive to honor those who've lost their lives to cancer, let us not forget to take good care to love and honor and cherish those who are still a live. In the meantime, feel free to check back periodically. Again, we'll see what happens... one step and day-at-a-time.

That is my hope and my prayer. 

Here's to living our best life! (and contributing to the cause when/where we can) 

Sincerely,
Danielle White
Co-founder/president
The Cancer Crusaders Organization


*Note: While we figure out how to set up donations online again, you are welcome to order official Skin Cancer Awareness pins via "snail-mail". If interested, please email me at: acancerfreeutah@gmail.com and you'll receive instructions on placing a tax-deductible order. You can also order a ton of products - from buttons, stickers, hats, bags, water bottles, mugs, and magnets - featuring the National Skin Cancer Awareness Symbol at: http://cafepress.com/SkinCancerRibbo. Thank you for your support! 

Looking for SkinCancerRibbon.org?

Many of our readers have inquired about the status of our SkinCancerRibbon.org site. Due to technical difficulties, the site is currently down; however, we have established a [temporary] blog where the latest information regarding the National Skin Cancer Awareness ribbon will be posted. That blog is located at the following URL:

http://skincancerribbon.blogspot.com

Additionally, a variety of previous posts contain a lot of valuable information regarding the National Skin Cancer Awareness Symbol - and how to get your official pin. So, feel free to surf this blog. If you have any additional questions about the ribbon, the book, and/or our organization, you can send an email to: info@cancercrusaders.org

We should be posting information about winter sun safety and other valuable tips/tools shortly, so keep your eyes peeled. Remember, sun safety is a year-round affair. We invite you to read previous posts and learn more!

The Cancer Crusaders Organization.

UV Safety Month: Understanding Ultraviolet Radiation

Traditionally, May has been the designated time when national promotional efforts are focused on skin cancer prevention. (Though, in reality, skin cancer prevention is a year-round issue). The subject of skin cancer prevention/sun safety has resurfaced this month - July has been officially named "UV Safety Month".

Speaking of UV safety, particularly in relation to skin cancer prevention, I'm reprising a Blog post I wrote last year that describes (in laymen's terms) how ultraviolet radiation works - it’s dangers, why we need to be aware of it, and how to protect ourselves:

Understanding Ultraviolet Radiation - Q&A


Q. What is solar ultraviolet radiation?

A. Ultraviolet radiation (UVR) is defined as the portion of the electromagnetic spectrum between 100 nanometers (nm) and 400nm. Ultraviolet radiation is classified by wavelength into three regions: UVA - Ultraviolet radiation in the range 315nm to 400nm is thought to contribute to premature aging and wrinkling of the skin and has recently been implicated as a cause of skin cancer. UVB - Ultraviolet radiation in the range 280nm to 315nm is more dangerous than UVA and has been implicated as the major cause of skin cancers, sunburns, and cataracts. UVC - Ultraviolet radiation in the range 100nm to 280nm is extremely dangerous but does not reach the earth’s surface due to absorption in the atmosphere by ozone.


Q. How are people exposed to UVR?

A. Solar UVR is the single most significant source of UVR and can reach a person on the ground from three sources, directly from the sun, scattered from the open sky and reflected from the environment. This means that even if a person is shaded from the direct sun they can still receive substantial UVR exposure from the open sky. Also some ground and building surfaces are quite reflective to UVR including white paint, concrete and metallic surfaces. These surfaces can reflect UVR onto the skin and eyes. Reflective surfaces can reduce the effect of protective measures. There are also many types of artificial UVR sources, some of which emit high levels of UVR. Arc welders used in industry produce an intense UVR emission and workers exposed to welding radiation may suffer similar health effects to workers with over exposure to solar UVR. There are many other forms of artificial UVR sources such as fluorescent lamps, mercury vapor, metal halide and quartz halogen lamps used in industry, offices and in the home.

Q. How is UVR measured?

A. Broadband UV biometers and pyranometers are generally used to measure or monitor solar UVR. These instruments measure global solar UVR received on a horizontal surface from the entire hemisphere of the sky. Solar radiation includes both UVR transmitted directly and scattered UVR from the atmosphere, so the design of these instruments ensures measurement of both direct and diffuse radiation. These instruments can also be used to monitor changes in ozone levels and cloud cover effects by measuring changes in UVR irradiation levels.


Q. What are the effects of exposure to UVR?

A. Major organs at risk from exposure to UVR include skin and eyes as the penetration depth of UVR is very short. Ultraviolet radiation can be produced by various artificial sources but for most people the sun is the predominant source of UVR exposure. For outdoor workers without adequate protection or control measures the levels of solar UVR may exceed the generally accepted exposure limits. Those who have been over-exposed to UVR may be unaware of their injury as UVR cannot be seen or felt and does not produce an immediate reaction. Over-exposure to UVR can cause sunburn, skin damage and skin cancer. The most obvious short-term effect of over-exposure to UVR is sunburn. The more UVR exposure, the worse the sunburn becomes. A person’s cumulative exposure to UVR along with the number of severe sunburns they have received, especially during childhood, increases their risk of developing skin cancer. Sun exposure causes the outer layers of the skin to thicken and long-term exposure can cause skin to wrinkle, sag and become leathery. Melanoma, the least common of the skin cancers but the most dangerous, may be related to severe exposure to solar UVR at an early age. Malignant melanomas may appear without warning as a dark mole or a dark “spot” on the skin. UVR exposure also places our eyes at risk of photokeratitis, photoconjunctivitus, ocular melanoma, and cataracts. Cataracts is one of the most common types of eye damage in Australia. Cataracts is the clouding of the lens of the eye, which is responsible for focusing light and producing sharp images. Without intervention, cataracts can lead to blindness.

Q. How can I reduce my risk from UVR exposure?

A. Increasing public awareness and interest in UV protection is due in part to the requirements for occupational protection of outdoor workers as well as the provision of UVR protection for the recreational market. Behavior outdoors can significantly affect a person’s solar UVR exposure and use of items of personal protection can provide a substantial reduction in the UVR dose received. Many forms of personal protection are available to reduce a person’s exposure to solar UVR. The best protection is to avoid peak hours of 10:00 AM and 4:00 AM when the sun's rays are most intense, coupled with proper sun protection year-round (even on cloudy and cold days). When outdoors, wear sun protecting clothing with good body coverage (rated at UPF 50+), a wide-brimmed hat, UV protective sunglasses and SPF 30 sunscreen. Over recent years interest has extended to shade structures and the UVR protection offered by commonly used materials such as shadecloth, plastic roofing materials, glass and window tinting films, even specially manufactured sun protective clothing. Additionally, everyone should avoid tanning beds. There is NO SUCH THING AS A SAFE TAN!



Q. What is the UV Index?

A. Some exposure to sunlight can be enjoyable; however, too much could be dangerous. Overexposure to ultraviolet (UV) radiation can cause immediate effects such as sunburn and long-term problems such as skin cancer and cataracts. The UV Index, which was developed by the National Weather Service and the U.S. Environmental Protection Agency (EPA), provides important information to help you plan your outdoor activities to prevent overexposure to the sun’s rays. The UV Index provides a daily forecast of the expected risk of overexposure to the sun. The Index predicts UV intensity levels on a scale of 1 to 11+, where low indicates a minimal risk of overexposure and 11+ means an extreme risk. Calculated on a next-day basis for every ZIP code across the United States, the UV Index takes into account clouds and other local conditions that affect the amount of UV radiation reaching the ground in different parts of the country.

UV Index Number Exposure Level
0 to 2 Low
3 to 5 Moderate
6 to 8 High
8 to 10 Very High
11+ Extreme


With 90-95% of skin cancers resulting from over-exposure to ultraviolet radiation from the sun and tanning, skin cancer is largely preventable. Yet, in order to prevent skin cancer we must take proactive measures to protect ourselves and youth from it. The media and society, as a whole, may not recognize the seriousness of skin cancer and how incidence is growing at epidemic rates; however, I will continue to do bring this issue to light in hopes to not only raise awareness but convince people to protect themselves. We have a responsibility to do what is necessary to protect ourselves and others from skin cancer, especially when we can largely PREVENT it. The first step is proper education about skin cancer prevention. And the first step in preventing skin cancer (or, at least, significantly reducing our risk) is protecting our skin from over-exposure to damaging, even carcinogenic (cancer-causing) ultraviolet radiation. In turn, one of the most effective methods of protecting our skin from UV exposure is proper year-round use of a quality SPF 30 sunscreen (see www.bluelizard.net) and UPF 50+ sun-safety clothing (see UVSkinz.com).

For more information about quality sunscreens and sun protective clothing, see previous Blog posts.


That being said, UVSkinz is extending its offer to give a FREE UV protective shirt (with every purchase) until August to celebrate UV Safety. Please see www.UVSkinz.com to learn more about how you can get a free UPF 50+ (SPF 30) sun-safety shirt for your family.





Sources: American Academy of Dermatology & ARPANZA.

Copyright. Danielle M. White, The Cancer Crusaders Organization 2005-2008.

Get a FREE Sun Safety Shirt - NOW!

Sun safety doesn't mean you have to keep the kids cooped up inside all summer long; rather, effectively protecting them from over-exposure to UV rays. More than 95% of skin cancers are caused by over-exposure to UV rays. Therefore, this ever-growing cancer is largely preventable – if we are proactive about protecting ourselves and our children. This means proactive, year-round (and daily) sun safety! (Refer to previous Blog posts about sun safety for kids and the danger of ultraviolet radiation.)

In addition to properly applying sunscreen every day (even on cloudy and cold days), leading dermatologists at the American Academy of Dermatology recommend wearing quality sun protective clothing. The sun protective clothing available through UVSkinz.com is rated at UPF 50+ (the highest rating) which blocks out >97.5% of UV rays. It’s equivalent to an SPF 30 sunscreen. Together, the proper application of an effective broad-spectrum SPF 30 sunscreen (like Blue Lizard Sensitive or Baby) and wearing quality UPF 50+ sun protective clothing (like those available at UVSkinz.com) provides superb UV protection.

In effort to help families teach their children about the importance of sun safety, UVSkinz.com will be giving away one free UV protective shirt to each family from now until the end of June. UV Skinz founder, Rhonda Sparks, is giving away a free sun protective shirt to honor her husband, Darren, whom she lost to melanoma. Darren, a father of three young children, was only 32-year-old when malignant melanoma – the deadliest form of skin cancer – claimed his life. June commemorates his birthday.

So, from now until June 30th, get a free UV protective shirt for your family through UVSkinz.com. For more information, send an email to: info@uvskinz.com. This is a great opportunity get your hands on quality sun protective apparel this summer! And, don’t forget to apply the sunscreen! (Read previous Blog posts about proper sunscreen application.)

Stay tuned for more information about tips and tools to help educate your children/family about effective sun protection.







Note: The free sun-safe shirt give-away is exclusively through UVSkinz.com. For information and other details, please visit their site. The give-away will go until June 30, 2008. Please take note of the rules regarding the give-away when logging on to www.UVSkiz.com. (The shirts are free with ANY purchase). Please contact UV Skinz for more details.

Introducing a Great Sun Safety Tool for Kids

Many of us have heard about the dangers of over-exposure to ultraviolet radiation, and its direct link to an increased risk for skin cancer. Yet, how many of us proactively protect ourselves – and our children?

The risk for skin cancer is not hype; rather, it’s a very real threat. More than 1.3-million Americans will be diagnosed with a form of skin cancer this year – including melanoma, the deadliest form. In fact, melanoma kills more women in their 20s and 30s than any other cancer. Melanoma is even being seen in young children.


It's true - skin cancer is the world’s most common cancer, and the fastest growing cancer in the United States.

The good news: Skin cancer is largely preventable if we’re proactive about year-round sun protection.

According to the American Academy of Dermatology, 80% of one’s lifetime sun damage occurs before age 18. In other words, if a child suffers one “blistering” sunburn before they reach 18, their risk for skin cancer as an adult dramatically increases (by approximately 60%).

These staggering statistics illustrate a growing epidemic that requires proactive prevention. This includes proper, regular application of a quality broad-spectrum SPF 30 sunscreen – year-round (even on cold, cloudy days). Before your child goes outside, be sure to apply a shotglass amount of a quality broad-spectrum SPF 30 sunscreen all over their body (don’t forget the ears, backs of necks, tops of feet, and hands). Do this approximately 20 minutes before they go outdoors. Then, reapply sunscreen every hour. If your child is under the age of six months, consult your dermatologist for advice. (Infants that young shouldn’t be exposed to direct sunlight for prolonged periods of time.) Begin the process of daily sunscreen application when your children are young to foster a lifelong habit of proper sun protection. And, as with any important lesson, children learn best from example; therefore, parents should be applying sunscreen every day and reapplying it every two hours.

For more information about how sunscreens work, how to choose a quality sunscreen, and how to maximize sunscreen efficacy, please surf the Blog to view articles discussing this topic.

In the meantime, here’s a great educational tool to help teach your children about the importance of sun safety:

SKIN SENSE, written by social worker/mother Lori Glickman, is the first – and only – children’s book that teaches young children about sun safety/skin cancer prevention. Written in the voice of a four-year-old girl, it’s engaging and easy to understand. Order your copy today at www.UVSKINZ.com.

" [SKIN SENSE is] An accurate and important book, which grabs the attention of its young audience and impels them to want to protect their skin.” - Dr. Katherine Bell, dermalogist, Texas.

Blue Lizard Free Sample Update

Dear Friends and Colleagues,

Thank you for your interest in Blue Lizard Australian Suncream.

At this time, we have reached our cap for sample requests. Because we're a nonprofit organization comprised of volunteers, our resources are limited. Therefore, we can only accomodate so many requests at-a-time.

When we initially promoted this offer, we had no idea there would be such a surge of interest. Therefore, we set a cap between 500 - 1,000 samples max.

We're thrilled that so many people responded favorably, and are encouraged to see such an interest in sun protection. Indeed, there is a great deal of work still yet to be done to educate our communities about skin cancer prevention.

While we have reached our current cap, we do plan to offer free sunscreen samples again in the future. We'll keep you posted.

In the meantime, please read the blog often for skin cancer prevention education tips and updates.

Thank you, again, for your interest - and for helping us fight skin cancer.

Yours in the fight,
The Cancer Crusaders Organization



*Note: We offer(ed)free samples of Blue Lizard Australian Sunscream independently as a public service/educational tool because it's recommended by leading dermatologists. This offer was/is not affiliated with Blue Lizard in any way. We do not make a practice of endorsing products; rather, we donate our time, energy and resources to raising awareness about skin cancer prevention/sun safety. To purchase Blue Lizard sunscreen, please visit www.bluelizard.net. Thank you.

Show you care, Support the cause

It’s that time of year again – it’s summer time.

Spending more time outdoors means we need to be especially careful about proper sun protection. As many of you know, skin cancer is the most commonly diagnosed cancer in the world.

While skin cancer incidence continues to rise, the good news is: It’s preventable!

On this blog, you’ll find a variety of helpful tips on how to protect yourself and your loved ones from skin cancer. Everything from choosing the right sunscreen to proper application, to performing self skin exams – it’s all available here on the blog. So, take a few minutes to read through it. If you have any questions or concerns, please feel free to send me an email at info@cancercrusaders.org.

Another great site for valuable skin cancer prevention information is www.aad.org – this is the official site of the American Academy of Dermatology. You can also pick up a copy of our book -ONLY SKIN DEEP? at Barnes & Noble online.

As we continually work to stem the tide of skin cancer through increased awareness and prevention education, we ask for your support.

By donating $5.00 you’ll get a Skin Cancer Awareness pin featuring the official National Skin Cancer Awareness Symbol®.

To get your official Skin Cancer Awareness pin, and help support the cause, simply click below:

Thank you for your support!

Here's to your health,

Danielle, co-founder/president
The Cancer Crusaders Organization
PO BOX 2076 Provo, Utah 84603



(please allow up to 4 weeks for delivery of pins).


** Show you care -- send a picture of yourself wearing the Skin Cancer Awarenss pin, and you can get a special "thank you" gift from The Cancer Crusaders Organization.

Yes, I still care!

Today is May 30th which means it’s the last day of the month. Moreover, today marks the last day of national Skin Cancer Awareness month. It signifies the first Skin Cancer Awareness month in five years when I haven’t been proactively pushing the cause.

I feel so guilty!

Some cancer crusader I am, huh? The co-founder of The Cancer Crusaders Organization – the proud home of the official Skin Cancer Awareness ribbon – has neglected to host an event or even publicly acknowledge the cause this month. No speech or seminar, no conference or fundraiser – I haven’t even written any educational articles or blogged about skin cancer/sun safety this month.

In truth, I’ve been feeling guilty about this all month. Cancer crusading used to be a full-time [volunteer] job for me – I’d put in countless hours of work into it. After spending a full day at my real job for 8 or even 12 hours, I’d devote more hours working into the night (not to mention the hours spent on volunteering my weekends). The lack of time, resources, and manpower didn’t matter. I was passionate. I was relentless. I was dedicated. I was a “cancer crusader”.

I’m still a cancer crusader, though. I still wear the official Skin Cancer Awareness pin on my jacket lapel. But, I don’t wear it on my shirt every single solitary day like I used to for nearly four years. I still have a gallon jug of Blue Lizard Australian Suncream next to the front door of my apartment, and carry travel-sized bottles of it in my purse. I’m still the Willy Wonka of sunscreen samples, disbursing them freely whenever I hear someone’s been burnt or spends gratuitous amount of time outdoors without protection. Yet, I have about 50 emails requesting free samples to be mailed that I haven’t even answered. I think about those emails everyday thinking I’ll have a chance to answer them/send them samples, but by the time a free moment arrives I’m getting ready for bed. I just can’t seem to pull all-nighters anymore – I need at least seven hours of sleep to be functional at my job; my livelihood. Besides, walking eight blocks to the post office in the middle of the night isn’t exactly a wise idea). I still cringe with annoyed disgust at advertisements that promote tanning beds and perpetuate misleading/false information about sunscreens – I’m still tempted to write a letter in complaint. I still think about updating the ONLY SKIN DEEP? Book, and finally finishing the second one that’s about 80% done. (Actually, it’s been written but still needs some tweaking/editing/revision/reorganization.) I still pray for people I know touched by the disease, read the monthly email blasts the EPA sends to stay abreast of current trends and pertinent issues related to skin cancer/sun safety, I still try to help others with their skin cancer projects (i.e., Skin Sense), and I still wish there was more that I could do. I STILL CARE.

[But] life happens.

As the years pass, there are different things that demand our immediate attention. Our priorities don’t necessarily change, per se; rather, certain priorities require different things – a different level of personal investment and commitment – at different times in our life. As we grow and progress, our priorities grow (and “adjust”) along with us. I suppose it’s all part of the natural ebb and flow of life. And, realistically, I’m not the “same” person I was five years ago when I was traveling hither-and-yon across the state with my cancer crusading sidekick Miss Utah Natalie Johnson-Hatch (the creator of the National Skin Cancer Awareness Symbol®) promoting sun safety 24/7. And, to be honest, a part of me is glad for that. I’m grateful for the personal and professional growth I’ve experienced since then. I’m looking forward to further growth and progression as I strive to be the person HE wants me to be.

It’s not that I don’t care about cancer crusading. I’m still a cancer crusader. I just don’t do it exactly the same way I used to; I give in different ways now because certain priorities have required a certain amount of personal investment and commitment. The timing may have changed slightly, thus I am unable to devote AS MUCH TIME to the cause as I once did (and would like to). Yet, I still care.

I just show that care differently. I suppose it’s more internal than external. (Does that make sense?)

I have received many, many comments from partners in the skin cancer community wondering why “you don’t do as much – if anything – for the cause anymore, Danielle.” They ask, “don’t you care about it anymore? You used to be so passionate. You used to do so much.”

Yes! I still care.

And I still do a lot – just a lot of different “stuff”. I’m diligently working so that I can do exceptionally well at my career, so that I can achieve job security – pay my bills, pay off my student loans, and be a responsible adult like everyone else (and, course, donate to the cause). I’m preparing for GRAD school. I’m devoting more time to my spiritual pursuits so that I can strengthen my relationship with God. I’m taking care of myself – something that I’ve really neglected to do over the years. I’ve always felt so guilty about investing in myself. I much rather serve, care for and love others than think about myself. Yet, I’ve paid some pretty high prices for not properly caring for myself or investing in my personal well-being and growth. A good friend recently said to me, rather abruptly: “You can’t help anyone else unless you help yourself!” And while the delivery of the message may not have been ideal, and as much I really regret having driven someone I care about to such extreme frustration, the truth of the message is, more or less, irrefutable.

So, I’m taking the time to help myself so that, in time, I can truly help others more effectively and bless others’ lives.

Perhaps, in a way, I’m doing more for the cancer community – and my friends – than I ever have before… Either way, I’m still doing what I can – right now.

Take Nothing for Granted: Sun Protection a Year-Round Affair

Many of my readers will likely remember the story of Tiffany Berg, and her husband Paul – a two-time skin cancer survivor. After years of skiing, snowboarding, and failing to wear any sunscreen caught up to him Christmas 2004, when Paul was diagnosed with squamous cell carcinoma. What, at first, to be a pesky sore began growing up through the epithelial layer of his mouth, and through his nasal cavity. Unfortunately, the first round of “natural” treatments did not work. The squamous cell carcinoma returned. Yet, after several rounds of radiation, and serious re constructive surgery to repair his mouth and face, Paul's skin cancer was removed and he was deemed to be “cancer-free.”

Alas, Paul's skin cancer returned three years later. As of December 25, 2007, Paul had a two-inch tumor removed from his lower right jaw. The squamous cell carcinoma had returned. As such, the father of five is now undergoing six weeks of radiation treatment.

When Tiffany told me that Paul's skin cancer had returned, I was – in a word – stunned. I was reminded that we must not taking anything for granted—not even skin cancer!

While squamous cell carcinoma is generally 90-95% treatable when found in its early stages, it has the potential for metasis if left untreated. In other words, it can grow and spread to other parts of the body thus becoming potentially life-threatening. Hence, it is vitally important that we perform regular skin exams each month, and visit the dermatologist every year. Moreover, we must be vigilant about wearing an effective broad-spectrum sunscreen all year-round—even during the winter. So, winter sports enthusiasts beware – ultraviolet radiation is highly reflective off of water and snow. The UV exposure from above is akin to double-whammy; therefore, be sure to protect your skin—especially your face and mouth—with proper sunscreen. And remember, to reapply sunscreen at least once every two hours (every hour if you are skiing/snowboarding at particularly high altitudes for an extended period of time).

Consider the following statistics recently released from a study conducted by Patricia Ayanbadejo, a scientist for the Internet Journal of Dentistry and Primary Orofacial Squamous Cell Carcinoma:

“Squamous cell carcinoma of the orofacial region [mouth and face] is an insidious and potentially life-threatening malignant neoplasm representing more than 90% of all head and neck cancers”, Ayanbadejo says.

In layman's terms, this means that squamous cell carcinoma can be potentially deadly if left untreated, and that it accounts for nearly all head/neck-related cancers.

Yet, the good news is that since squamous cell carcinoma (like other skin cancers) is largely attributable to cumulative sun exposure, it is largely preventable. Skin cancer is preventable if we are proactive about proper sun protection—all day, every day, even on cloudy and cold days.

Ye winter sports enthusiasts have been warned. Take nothing for granted. Remember, ultraviolet radiation is reflective—highly reflective off of snow and water. Hence, it is imperative that you apply a quality broad-spectrum SPF 30 sunscreen to all exposed parts of your body—especially your face and lips. To learn more about how ultraviolet radiation works, and the importance of proper application (and reapplication) of a quality sunscreen, please read the hyperlinked articles. For a free sample of Blue Lizard Australian Sunscreen to take with you as you hit the slopes (or whenever you venture outdoors), please contact The Cancer Crusaders Organization at info@cancercrusaders.org

Skin cancer is preventable only if we are proactive about proper year-round sun protection, as well as regular skin exams. So, be sure to take the proper precautions NOW to protect yourself from a future skin cancer diagnosis. Parents of young children under the age of 18, should adequately protect their children from UV exposure especially since 80% of one's lifetime sun damage occurs before age 18.


Additionally, if you have had skin cancer removed in the past, be sure and follow-up with your dermatologist-oncologist so to avoid recurrence. “Regular examination of the skin, especially of the head and neck if you have had orofacial skin cancers removed in the past is particularly important during the first two years of treatment, when 90% of recurrences develop,” says Ayanbadejo. “Local recurrence, or development of new primary tumors, is particularly common in patients who have been treated for cancer in the upper aerodigestive [lips, mouth, tongue, nose, throat, vocal cords, and part of the esophagus and windpipe] tract,” she says. “These patients are not only at risk for cancer in the head and neck region (recurrences and second primaries) but also of developing cancer in other parts of the body, particularly the lungs or esophagus.”

Again, skin cancer is preventable. Yet, it is also the most common cancer in the world. As such, it is imperative that we make sun protection a year-round affair, even during the winter months. While we may think that sun exposure will not directly effect us now, the cumulative exposure can—and does—lead to a heightened risk for skin cancer in the future. As Paul Berg once said in an interview conducted in 2005, after his second bought of skin cancer, “as kids we had no idea that the sun could hurt us.”

With that, take nothing for granted. Be proactive and protect your skin—all day, every day—for life! Skin cancer is not a summer-time only disease; rather, sun protection is a year-round affair.


For more information, check out the American Academy of Dermatology.

(Note: Special, updated edition of ONLY SKIN DEEP? An Essential Guide to Effective Skin Cancer Programs and Resources coming soon.)

An Introduction to The World's Most Common Cancer – Skin Cancer

A Growing Epidemic

Recently, the National Cancer Institute reported that the overall cancer mortality in the United States has been slowly declining since 2006. Breast cancer, prostate cancer, and colon cancer have seen a reduction in number of deaths; however, melanoma—the most lethal form of skin cancer is continually on the rise. In fact, the American Academy of Dermatology (AAD) reports that more than 1.3 million Americans will be diagnosed with a form of skin cancer this year alone. They further report that melanoma skin cancer kills more women in their 20s and 30s than any other cancer—even exceeding lung and breast cancer, which were once considered to be the two most common cancer-related deaths for women in 2005. To bring this issue into more stark perspective, melanoma skin cancer incidence in the United States has increased by more than 6,000% in the past century, according to the both the AAD; every hour someone in the United States succumbs to melanoma skin cancer.

Before we examine why the skin cancer rate is increasing by near epidemic proportions in the U.S., and abroad, we must first understand what skin cancer is; how it develops, the different types, the signs and symptoms, including risk factors.

As mentioned in a previous article, cancer is the uncontrolled growth of mutated, abnormal, and immature cells in the body. Therefore, simply put, skin cancer is the uncontrolled growth of immature cells in the skin.


Skin Cancer Basics

That said, there are three basic types of skin cancer – basal cell carcinoma, squamous cell carcinoma and melanoma—the deadliest form. Basal cell carcinoma, the most common form of skin cancer, refers to the location from which the lesion derives. In other words, the encyclopedic definition of basal cell carcinoma is a cancer that originates in a layer of skin (the basal layer) beneath the epidermis (the top, uppermost layer). Basal cell carcinomas are typically seen as a raised nodule, much like a wart or a lump, or even as reddish scaly sore. Basal cell carcinomas may also have a glossy, pearl-like tone to them.1 While basal cell carcinomas seldom metastasize (spread), they can, if left untreated, spread to the lymph or blood vessels. Fortunately, basal cell carcinoma is 90-95% treatable if caught and treated while in its early stages.

The second most common form of skin cancer is, as mentioned earlier, squamous cell carcinoma. Akin to basal cell carcinoma, squamous cell carcinoma originates from epithelial tissue (a sheet of closely packed tissue that lines both external and internal bodily organs). Squamous cells are flat and often overlapping; they compose the epidermis and line certain internal cavities such as the mouth. Like basal cell carcinoma, squamous cell carcinomas usually appear on areas of the body that have been [over] exposed to ultraviolet radiation from the sun and tanning beds. Common areas for a squamous cell carcinoma to appear include the face (nose, inside/outside of the mouth), scalp, neck, ears, chest, hands, and legs. In rare instances, squamous cell carcinoma can be found in other parts of the body that are typically not exposed to UV rays (i.e., the prostate or vagina). Yet, in nearly all instances, squamous cell carcinoma appears as the result of prolonged, over-exposure to ultraviolet radiation.

You will notice that squamous cell carcinoma looks much like a sore. A persistent sore that will not heal after four or more weeks may be indicative of a possible squamous cell carcinoma. When in doubt, consult a board certified dermatologist. When properly treated, in its early stages, the cure rate for squamous cell carcinoma is approximately 90%. However, squamous cell carcinomas left untreated may spread to the lymph nodes and other surrounding areas, perhaps even becoming a malignant melanoma - an aggressive, and potentially lethal form of cancer.

Melanoma skin cancer may be the rarest form, but it is the most dangerous and lethal form of skin cancer. Whereas, basal cell and squamous cell carcinomas share similar characteristics, melanoma is in a class by itself. It is an entirely separate form of skin cancer. Melanoma is also unique in comparison to other cancers in myriad ways. This is largely due to its particularly aggressive nature. In fact, more than 85% of skin cancer-related deaths are due to melanoma.

Once uncommon, melanoma kills more women in their 20s and 30s than any other form of cancer, according to the American Academy of Dermatology. In fact, we have seen a 10% increase in melanoma incidence since 2006. It is estimated that 105,750 new cases of melanoma will be diagnosed in the U.S. this year alone, with more than 8,000 of those resulting in death. In other words, melanoma kills another American every hour.


Deadly, but Preventable

Despite these staggering statistics, melanoma – like other skin cancers – is largely preventable. Because more than 90% of skin cancers are caused by prolonged over-exposure to ultraviolet radiation from the sun and tanning beds, it is preventable. Yet, melanoma is a very serious, even potentially deadly form of cancer.


So as to provide you with a clearer understanding of what melanoma is, let us dissect it. If we cut word melanoma in half, we have two separate words – mela and noma. The root mela comes from the word melanocytes, which are cells in the skin (located beneath the epidermis) that are responsible for producing pigmentation. The latter half of the term – noma – comes from the word carcinoma, which is a term referring to cancers of the body's external tissues and organs such as the skin. In fact, skin is the largest bodily organ!

Contrary to popular belief, melanoma is not a disease restricted to individuals with fair skin. Anyone with skin is at-risk for melanoma. While it is true that fair-skinned persons are at higher risk for melanoma skin cancer (Caucasian-Americans are 20 times more likely than African Americans to develop melanoma), melanoma is not a respecter of persons. In fact, popular Jamaican Reggae singer Bob Marley died of malignant melanoma, at age 36. So, simply put, anyone can get melanoma. Hence, it is imperative that we are proactive about protecting our skin from over-exposure to ultraviolet radiation, and are equally proactive about monthly self-skin exams and annual visits to the dermatologist.

To learn more, check out ONLY SKIN DEEP? An Essential Guide to Effective Skin Cancer Programs and Resources. (Revised, Special edition due out soon!)

Copyright. Danielle M. White, The Cancer Crusaders Organization 2005-2008.

Cancer Crusaders Strike Gold Again

For Immediate Release: December 10, 2007
The Cancer Crusaders Organization
info@cancercrusaders.org




Cancer Crusaders strike Gold again with one-of-kind skin cancer program for youth

Provo, UTAH (December 10, 2007) – Winter hardly seems the appropriate time to be discussing skin cancer prevention, but The Cancer Crusaders Organization knows that sun safety is a year-round affair.

The Cancer Crusaders Organization, an all-volunteer non-profit skin cancer education facility for young adults based in Utah, announces that it will be honored with the prestigious Gold Triangle Award by the American Academy of Dermatology for excellence in dermatology education. This will be third consecutive year that The Cancer Crusaders Organization will receive the honor.

“When we started Cancer Crusaders, one of our main objectives was to introduce a national ribbon symbol for Skin Cancer Awareness,” says Danielle M. White, co-founder and president of The Cancer Crusaders Organization. “We also wanted to recruit young adults in the crusade against skin cancer by developing unique and interactive ways to appeal to them, inspire them, and educate them. [This way] they can then raise the next generation of sun-savvy youth.”

White, who established The Cancer Crusaders Organization with friend and colleague Natalie Johnson-Hatch, a former Miss Utah, says focusing on skin cancer is a message of hope.

“While skin cancer is the most common, and fastest growing cancer in the world, it is also the most preventable. In fact, 90-95% of skin cancer is caused by over-exposure to ultraviolet radiation from the sun and tanning beds; therefore it is largely preventable!” White adds that since more than 80% of one's lifetime sun damage occurs before age 18, it is vital that we teach young adults now, so that when they become parents they can protect their children. "By educating youth, we can stem the tide of this growing epidemic," she says.

As such, White spent the better part of 2005 and 2006 developing a pilot program called ONLY SKIN DEEP? Peer Educator's Training and Certification Program, which featured interactive academic lessons, tools, and other materials to teach youth about skin cancer. The program was then launched in 2006 as a test run to train high school and college students to become peer educators. “The primary objective of this peer education program is to involve young adults; to train them to teach their peers about the importance of basic skin and environmental health, skin cancer prevention, and sun safety,” White said. Students, after completing the eight week course, were then asked to complete assignments, take a final exam, write an essay, and perform various community service projects where they taught others about what they learned through the peer education program.

“The test run was very well-received,” White said. “One of our students, a junior at Southern Utah University, hosted several skin cancer awareness events in her community. She even got the city mayor involved!” White says that this student's essay was “so impressive” that she included it in her recently published book about skin cancer. “We received such valuable feedback from the students who participated in the pilot run, we have been diligently working to update the program [to make it] available to all melanoma skin cancer foundations, educational facilities, even the AAD in 2008/2009.”

White continues, “the message of skin cancer prevention – how important it is to take the necessary precautions, such as year-round sunscreen use, avoiding tanning beds, examining your skin – tends to be more meaningful to youth when it is received by a peer. This is why we developed the first—and--only curriculum that trains youth to teach others about skin cancer.” White says that if high schools and colleges, as well as other melanoma skin cancer organizations, utilize this program, “we can really up the ante, so to speak, when it comes raising awareness and protecting people from this disease!”

For more information about the program, about the Skin Cancer Awareness ribbon, or the Organization itself, please contact us at 801.863.6351 or at info@cancercrusaders.org

###

The Cancer Crusaders Organization is a 501 [c] [3] non-profit founded in 2004 by Natalie Johnson-Hatch and Danielle M. White, and serves as the proud home of the National Skin Cancer Awareness Symbol(R).

First Sun Safety Book For Children Released This Month

News Release

A Book On Skin Cancer Prevention To Reach Children Soon




PROVO, Utah (October 11, 2007) - Skin cancer prevention is no longer just for adults; young children will now have an opportunity to read how to keep themselves protected. After a two year process, the first children’s skin cancer prevention book will be available Oct. 11 to students, teachers and parents everywhere.

The sun safety book, Skin Sense, is a publication focused on children’s awareness and prevention of skin cancer and sun damage. The book has been written for children ages two to eight and is hoped to reach young children across the nation. Along with preschools and daycares, the book will be sent to dermatology and cancer societies across the United States.
“Eighty percent of one’s lifetime’s sun damage occurs before age 18,” said Danielle White, co-founder and president of The Cancer Crusaders Organization. “We wanted to create a way for parents to understand why it is so important to protect their kids from skin cancer.”
White collaborated with Lori Glickman, a young mother from Florida, to create this book for elementary students.Glickman offered to do the project because she knew the importance of teaching children about sun safety now. Glickman’s 10-year-old daughter, Claudia Glickman, was recruited as the illustrator of the book to reach the children more effectively.
“Children have a great ability that once they understand a principle, it becomes a lifetime habit,” White said. “This book will teach them, and hopefully skin cancer prevention will become a lifetime habit.”
The book will be available through The Cancer Crusaders Organization to anybody who wants to increase awareness. All funds from the book are going to skin cancer education and training programs throughout the nation. The book will hopefully be used by teachers as a part of their curriculum. There are currently no required skin cancer education programs in Utah schools, where The Cancer Crusaders Organization is based, but the award-winning Organization is hoping this book will help change that quickly.
“I’d like to see all the preschools, daycares and elementary schools have a copy of the book,” White said. “The kids could check it out at the library and show their parents what they learned about prevention.”

To order copies of Skin Sense, please send a tax-deductible donation of $10.99 to The Cancer Crusaders Organization at PO BOX 2076 Provo, Utah 84603.

For a limited time only! Get a $1.00 off of your copy of SKIN SENSE, by purchasing it online here:

Press Contact:
Laura Bird
cancercrusaderspr@gmail.com

Danielle M. White
info@cancercrusaders.org